Thursday, February 11, 2010

Bid It Up

I have a favorite blog that is literally one of the first things I read every day.  I have never met this family, but I feel like I know Patrice and her sweet baby boy, Jonah.  Jonah has a very rare skin condition called EB, Epidermolysis Bullosa.  EB is a genetic disorder where the body lacks the collagen that anchors the skin.  Even the slightest touch can cause blistering and raw places to develop.  I love Patrice's, Jonah's mom, sense of humor, faith and strength in facing what is a daily fight for her son's life.  In order to celebrate the milestone of Jonah reaching his first birthday, 80+% of EB babies don't live to one year old, they are hosting an online auction to raise funds for EB research.  If you are so inclined, you can go here, to bid on items.  It definitely goes to a good cause. 

I can not imagine how difficult it must be to see your child suffer through a disease as horrible as this one.  Patrice is an inspiration and really helps me put my own life and struggles into perspective.  So go bid it up!


  1. I've been to there page, and I can't imagine how difficult it must be.

    Stumbled upon your blog! It's so cute! :o)

  2. I meant "their" page...I can spell, really!